What is Life with Marfan Syndrome like?

Life

-Most patients live to 40 years old to 70 years old

-The earlier Marfan Syndrome is detected, the patient will have a longer life.

-Marfan Syndrome is usually detected by a clinical evaluation and through family history

-Can not attend in physical activity

-Many are bullied for their physical appearance

-Judged and gawked at everyday of their lives.

Treatment

-Drugs called "Beta Blockers slow down rate of aortic enlargement, and decrease high blood pressure

-Since there are many spine problems with patients, a brace will be extremely helpful when worn to prevent any further surgery.

This picture displays the "Steinberg" and "Murdoch" sign. If a person can display this flexibility, it is a vast sign of Marfan Syndrome.